ON YOUR MARKS, GET SET…THE MYELOMA CHALLENGE

I’m 39 years old, no history of illness, Ironman finisher who has been diagnosed with myeloma. Did not see this coming. This blog summarises my journey from unexpected diagnosis through the treatment path. My aim is to use myeloma as a catalyst for living a better, more fulfilling life and documenting the changes I am making in all aspects of my family and work commitments.

“To make stem cells as common and available as aspirin”

The title hopefully summarises the strategic goal I am working towards.

I may not be the only person doing this. There are charities, individuals, companies, all aiming for one thing; that being to grow the number of registrants on the global register.

But this is my campaign and I have every confidence that with perseverance, creativity and knowing the people I am lucky enough to know, together we can all make massive inroads; not only into the UK based 2% but the global population too.

I have a plan…

__________________________

It starts with “10’000 Donors”

In the next 12 months, my aim is to get 10’000 new registrants signed up. (by September 2019)

How?

Awareness. Education. Basically, pimping myself  in person and online, to whoever will have me!

The first challenge is to get a critical mass of interest on all social media channels.

Twitter – @pmjmccleave

Instagram – pmjmccleave

Facebook – Peter McCleave

You Tube – Peter McCleave

Email – mccleavepeter@gmail.com

 

I have asked so much of you all but once again, I need your help.

Please share, like, talk to people you know and get them to please engage online with the campaign. Ask if they would be willing to let me come and present to them. Ask them to follow me online and share with their networks.

The internet can be used for so much more than cats playing keyboards. (and seriously, if such videos can go viral, surely this goal can achieve something similar!!)

Of course it would be great if everyone registered

(please use www.dkms.org.uk/peter-m going forwards so I can track how many people sign up!) 

but even if they don’t, having them mention to one of their friends who talks over a beer to their partner, who chats to their hairdresser etc… will keep the chain of communication flowing and organically grow the community.

If this can happen then I know the world will benefit from our work.

And how often can we say that?

This is only the start.

My presentation is finished and ready to be delivered. If I am feeling up to it and free, I will travel wherever.

I’ll write. Post. Support donor drives and promote any charitable events you guys find time to engage with to hit the target, I’ll then set an even bigger one.

This is not meant to be a war cry of unsubstantiated hyperbole.

I have to make this work.

Not just for myself and my family, but for all the people who are battling with an illness that could be managed or cured using stem cell technology.

We are at the beginning of what I believe could prove to be a huge step forwards in how quickly lives can be saved.

Imagine if the bank of stem cell donors was so vast, diverse and available, that when someone needed a transplant, they were more likely to find a match than less.

That they would not need to go out to campaign for a match. To concern themselves with how long they might have to live. Or how their families will cope. Or who to ask to help them find a donor.

I see a more complete and diverse register as akin to the impact Alexander Graham Bell made to how we communicate with our friends and family. Pigeon post was made obsolete in one technological leap.

And like the telephone, I want us to take stem cells for granted. Not ungratefully but as a benefit we can all take advantage of without prejudice.

So should the need to search globally for someone to donate something as simple and painless as stem cells when all they need to be is educated and stick a cotton bud in their mouth!

1st of September 2018 is when blood cancer awareness month starts and is when I officially go live with the campaign.

Watch this space… (and get involved if you can!)

 

 

 

 

 

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6 Comments

  1. phil starkey 26th August 2018

    Good luck sadly i cant haveva donot have have a weird DNA i was once a fit healthy firefighter so i know your pain im 2 transplants down and thats it for me unless they find a cure.

  2. SHEILA & JIM 28th August 2018

    Hello Pete,
    we will keep mentioning the cause, indeed, one regular in the pool this morning interested to get on the DKMS register so details will be passed over when we next meet – and are dressed/dry to hand information over.
    like the logo too….
    The Smarties

  3. Neil 11th September 2018

    Have sent them a message to see if I can participate. I had malaria 3 years ago. It has all gone but i just want to be sure. If it is not an issue, I will gladly sign up.

  4. Alison 13th September 2018

    I’ve signed up to be a donor, fingers crossed I will be able to help if not you at least somebody. Good luck with your fight

  5. Cassian 17th September 2018

    Thanks for coming to speak to us today, Peter – inspiring. Just signed up via your DKMS link. All the very best to you and your family!

  6. Fiona Pawsey 22nd September 2018

    Just signed up via your link. Hope all goes well for you x

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