Being a family blog I can’t use the expletives that naturally came to mind on yesterday news, but hopefully you get my drift without being too offended.
Where last week I was full of optimism on the news that the drugs appeared to be working, the consultant, having spoken to a colleague at the Christie in Manchester, changed tack yesterday and was less pleased with progress.
I guessed something was awry when I walked into the room and the nurse was in attendance for the meeting; I’ve noticed they usually double team news that is not so good.
And so the latest opinion is that the rate of paraprotein reduction is not as speedy as would be expected so despite the drop, its not lowering quickly enough. The Doc thought he could double up the dosage again but on review, it transpires that I am on the highest dose so sadly not an option.
What this means is a new treatment plan is going to be put in place which effectively escalates the volume and potency of chemo and will mean a 4 week stay in the Countess hospital as of Monday 21st August. It also means the dreaded Hickman line will need to be put in place which I was hoping to avoid as long as possible.
Typical that the illness I get is stubborn and won’t play nicely with the standard drugs of choice; always do it the hard way!
The nurse gave me a call this morning and filled me in on the next steps and her parting words were “make sure you enjoy this week.” Don’t need to read too deeply between the lines to understand how challenging the next 4 weeks are likely to be. And they expect a second round to be required too before the stem cell transplant can be initiated so I’m looking at a decent wedge of time away in the lead up to Christmas. (I’m hoping Jenn is sympathetic and sees the dog as credits for Christmas, birthday, anniversary and any other events I have probably forgotten for a few years to come)
Say good bye to hair and hello chrome dome. A certain Robert Murray will see the dark humour in this as he was banging on about shaving hair last year in a bid to be more streamlined for races. I’ll be so smooth in 2 weeks you may as well rename me Flipper, so on the plus side when I do get back to competing, I’ll be well prepared for posting some quick times.
I don’t have too much more to say so I won’t fill space with mindless ramblings. I’ll just close this post with the below not-so-cryptic imagry on what other choice language is currently circulating around my head.