ON YOUR MARKS, GET SET…THE MYELOMA CHALLENGE

I’m 39 years old, no history of illness, Ironman finisher who has been diagnosed with myeloma. Did not see this coming. This blog summarises my journey from unexpected diagnosis through the treatment path. My aim is to use myeloma as a catalyst for living a better, more fulfilling life and documenting the changes I am making in all aspects of my family and work commitments.

All on red

As I’m writing this do not for a second think the “first world problems” nature of my gripe is lost on me.

As most of you know by now, I have an all or nothing approach to most tasks. It’s why I tend to avoid casinos because I either win big or more often than not, lose bigger.

All on red.

Take up a hobby – Fly

Do a triathlon – Ironman (have I mentioned that before?!)

blah blah blah.

I have recently asked the medics if I could sneak a ski trip in before the stem cell transplant seeing as I’m getting on reasonably well with this chemo.

The answer has for want of a better phrase, has thoroughly pissed me off.

It is not likely I will be able to ski again.

I don’t go every year but to never go again is just bollocks.

Now not to panic my parents too much, but I’d rather go out enjoying myself than slope off into old age where crown green bowling is the pinnacle of excitement I can extract from my free time.

If I am going to take a gamble, I’ll do it on my terms doing what I enjoy doing.

This sounds petulant and childish and I guess it is.

Maybe I’m destined never to grow up physically or mentally, but to put it in context, I’ve spent the last year (yes, its the anniversary this week) doing as I’m told, not drinking, playing it safe. I am bored stiff and have no intention of spending the next X number years being a dullard.

I won’t be courting broken backs for the hell of it but there is a balance to be found. If fun happens to err towards the riskier option, I’ll probably take it and mitigate the issues as best I can.

I bored myself and probably you all, way too much in 2017.

I bought a bloody pair of chinos for Christs sake (I wont tell you what I invested in at Nantwich market today; there will be photographic evidence in due course!)

I promise that I will fight this fucker of a disease every step of the way. That is not cockiness or bravado; I just don’t know how else to take it on, even if I cannot ultimately beat it (yet)

And maybe if my luck is for turning, I might just rake in a few quid on the roulette as I go along.

 

 

 

 

 

 

 

 

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2 Comments

  1. Brenda Shipton 8th March 2018

    As you say Pete, you are still fighting this terrible illness, although you have had one hell of a year you have come through this and with the love of your family and all your friends not forgetting your medical teams you are going too get better and stronger after your stem cell transplant. What richer future is there but, too have a future with or without a ski trip or having a go on the roulette, trying too win or loose a few quid. The most precious gift of all Pete is life itself, believe you me I do know that. You must always be able to air your fears and be disgruntled but, with all of that look at the broader picture. Take care, Love from Brenda & Frank. xx

  2. Cliff 9th March 2018

    Bravo Peter. Remember your fitness will return, may take a while, but it will come back.

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