ON YOUR MARKS, GET SET…THE MYELOMA CHALLENGE

I'm 42 years old, (was 39 when life went somewhat awry) with no history of illness, Ironman finisher who has been diagnosed with myeloma. Did not see this coming. This blog summarises my journey from unexpected diagnosis through the treatment path. My aim is to use myeloma as a catalyst for living a better, more fulfilling life and documenting the changes I am making in all aspects of my family and work commitments.

A New Dope

Its not an original headline, but too good a plagiaristic opportunity to pass up…

Sending in the big guns

Check out the orange and red bags. One looks like hooky batch  of Irn Bru and the other has had to be covered in a red bag because its just plain nasty.

For those of you who have chanced upon the tv program “Naked Attraction,” (a wholly vile concept in my opinion, but if it’s on, I challenge anyone to honestly say they have not taken a sneaky peek at least once!) I might start raising the red bag a few inches every couple of hours to inject a bit of tension into proceedings. 

This. Is. It.

Day 1 of 28 and we start with 24 hours on the nuclear option. I’m 8 hours in to the drips and so far feeling ok.

To remind everyone, this plan is an all out attack on all rapidly replicating cells in the body, rather than the marginally more targeted approach taken initially. It should (will) nail the Storm Troopers but the friendly fire will invariably knock out the Ewoks too. (no more tenuous links in this post I promise; if anything, need to avoid Disney coming after me with a raft of Lawyers for infringing copyright!)

I’m a bit more tired but no immediate extreme reactions. I know its coming but for now, Ranulph Fiennes is keeping me company. Cracking read btw; right up my street and very relevant as you can appreciate.

The Hickman line has proved its worth too; so easy having the bags of goodness just connected rather than injected through a cannula. Still very odd however.

At least age and fitness are on my side so can’t really go much more aggressively than we are.

I feel genuinly lucky that I have the medical options on the table to fight this. Even though I’ll lose the hair and feel sh1t for a few months, it is great that there are ways to control what is a pretty unpleasant disease. I did ask again today if there was any chance the Docs had made a mistake; sadly we all know the answer I got.

So all in all a good day. Medication is so far, manageable and I’m loving getting the messages and visitors. I won’t get too sentimental but everyone of you is making such a difference to my approach and mindset. We are 1 day closer to the finish line!

Now, I’ve just got to hope that the Empire decides not to strike back and therefore negates the need for a returning Jedi to show up because I’ll have to don my slap head covering thinking cap and get creative with the headlines!

 

 

 

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7 Comments

  1. Jim & Sheila 22nd August 2017

    Hi Pete, how tricky would it be to ‘swop’ the contents of the red bag with a fine quality Highland Malt..?? No need to bother with ingesting it the ‘normal’ way – straight into the blood stream for maximum effect and with you missing the best of your taste buds perhaps not a bad option..?? No – best to stick with the chemo stuff for the time being, at least. Glad to hear progress going well and great to keep receiving these blogs…. Cheers for now. The Smarties

    • Pete 22nd August 2017 — Post author

      A fine suggestion but the nurses have the treatment plan and drugs locked down tighter than a Yorkshireman’s wallet! Maybe I’ll just do it the old fashioned way and see what happens!

  2. Tara walker 23rd August 2017

    Iron man through and through and amazing blog. Keep strong and love to you, the boys and of course the missus! From us all down here x

  3. Lynne Caffrey 23rd August 2017

    Hi Pete, what an amazing blog and keep up the puns, I’ve built a career on them. What I’m trying to say is like it I do. The Smarties are definitely on to something post-treatment there with the malt… We’re all wishing you and Jenny strength and love and decent hospital food from across the Irish sea. Xxx Lynne and Gavin

    • Pete 23rd August 2017 — Post author

      Thanks Lynne! Coming from a pro I appreciate your feedback! Hopefully it all goes to plan from here on. I found out today that the nurses are cool with me ordering takeaways so expect to see me pile on some pounds in due course. Hope you and Gavin are well. Really good of you to drop me a message. Much appreciated xx

  4. Enda 23rd August 2017

    The force is strong with this one.

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