ON YOUR MARKS, GET SET…THE MYELOMA CHALLENGE

I’m 39 years old, no history of illness, Ironman finisher who has been diagnosed with myeloma. Did not see this coming. This blog summarises my journey from unexpected diagnosis through the treatment path. My aim is to use myeloma as a catalyst for living a better, more fulfilling life and documenting the changes I am making in all aspects of my family and work commitments.

34 to 32 – Latest Paraprotein figure


Not as dramatic a drop as seen in round 1 to 2 but a drop which the doctors were happy with regardless, so although I was hoping for more, it’s still a dip in the right direction. Apparently this is expected at these levels and is on target for an acceptable figure for stem cell.

Also, I’ve had back surgery confirmed on the 17th November and the last anticipated round of pre-stem cell treatment confirmed for the 27th November. If all stays on track, this means I’ll be home for Christmas. Then January (date tbc) for the stem cell treatment and some semblance of an end in sight.

What a year 2017 turned out to be. Now is not the time to dwell too much but March when all this started to kick off seems an age away. I have to be very conscious not to look too far ahead and just get through each stage of the treatment as it arises but if I do plan on making changes to lifestyle when things settle down, I best start giving that some thought now.

We’ve got a family wedding we want to go to in June and a few other events that, subject to my progress, cannot be committed to just yet. Frustrating that this thing will continue to get in the way of a “normal” life for the foreseeable future.

I also need to get my head around how to deal with life dragging an illness around with me that at some point will come back. On the one hand it makes you not want to waste a day on pointless tasks and get the most out of every opportunity but on the other hand, life can never be as relaxed as it was prior to the diagnosis. Perhaps the mental battles ahead are going to be more taxing than the physical chemo therapy treatments; something to watch I guess.

So the plan is a bit clearer today and on track for making 2018 a more productive and enjoyable year than the current. Just need to find an insurance company to cover my trips abroad now!

 

 

 

 

Next Post

Previous Post

3 Comments

  1. SHE & JIM 19th October 2017

    Hi Pete,
    Really good news to see yet a further drop in Paraprotein levels – seems as though treatment is working for you so this has to be a very positive result for the longer term.
    Also good to have the back operation date to work towards – time is going so quickly.
    Very best wishes and lots of love from,
    The Smarties……

  2. jenny McCleave 19th October 2017

    Good job you will be back for Christmas some one will have to cook the turkey for the Smart, Davis and McCleave clan!!! Pheweeee!!!!

  3. Vicki A 19th October 2017

    Great to read the paraprotein levels are still decreasing Pete. I really enjoy your blogs for their honesty, wit and inspiration so thank you for sharing the good and bad stuff.

Leave a Reply

© 2018 ON YOUR MARKS, GET SET…THE MYELOMA CHALLENGE

Theme by Anders Norén