ON YOUR MARKS, GET SET…THE MYELOMA CHALLENGE

I’m 39 years old, no history of illness, Ironman finisher who has been diagnosed with myeloma. Did not see this coming. This blog summarises my journey from unexpected diagnosis through the treatment path. My aim is to use myeloma as a catalyst for living a better, more fulfilling life and documenting the changes I am making in all aspects of my family and work commitments.

28 Days Later…

So close to single digits and yet here we are again on a plateau.

Latest paraprotein is stubbornly stuck on 14, so March is going to be a big old month.

6 Nations will be decided. Newcastle will hopefully be comfortably north of the relegation zone and I will have a clear view on how much longer I can enjoy the sunshine before getting zipped up into quarantine.

On that note, if you have any good box set / movie suggestions send them my way. I anticipate having a truck load of time to do nothing more than watch tv or sleep. I’m hoping they let me stick an exercise bike in the room…

1 plus 1 may always equal 2, but illness plus drugs does not always equal cure.

Whatever is going on inside my compromised immune system, it just does not want to get with the program and be tamed. (I know, it sounds like a familiar trait!)

So one last crack at this chemo.

If it kicks into action again this month, in a twisted way this is good news but means 2 more months of drugs..

If not, its route 1 to stem cell transplant.

 

 

 

 

 

 

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3 Comments

  1. Mike 22nd February 2018

    Pete keep at it. Sorry I missed the birthday bash looked great

    Good TV

    Peaky blinders
    The bridge
    Narcos on Netflix
    Line of duty

    Take care

    Mike

  2. JIM & SHEILA 23rd February 2018

    Hi Pete,
    So frustratingly close to single figures – but another month and let’s hope…….
    Maybe you will need a plan to sneak-in some appetising grub – an airlock facility to receive the Nando’s deliveries…..
    In the meantime, best wishes.
    The Smarties

  3. Andrew Chapman 30th May 2019

    Pete, I have been made aware of your situation by a family relative as so have also been diagnosed with multiple myeloma nearly a year ago, and have been on chemotherapy for the past 6 months.

    Although we are on the same road, and journey, there appears to be a big difference in the figures and the treatments being received. I must admit that so am still struggling to understand proteins, paraproteins and freelytes but my scores have reduced from 1300 to just under 600 with my consultant wanting to get this score as low as possible, ideally 0, but is looking to commence a stem cell transplant once the score has fallen below 300.

    However there is one fundamental difference they are looking to harvest the required stem cells from my own blood, and not from an unknown third party!! So either we have something similar, or totally different?

    Furthermore, all my treatment is being carried out through the NHS.

    I hope that you find the above information of assistance. I look forward to hearing from you by email.

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